What is this research about?
With over 13,000 employees, UMCG is the largest employer in the Northern Netherlands. UMCG is a matrix organization in which the core tasks of patient care, education, training, and research are organized into clusters and cross-functional units. The Center for Home Mechanical Ventilation in Groningen is a subdepartment of the department for Pulmonary Diseases in the UMCG. It is one of the four centers in the Netherlands that supports and guides people who require long-term chronic ventilation at home. The aim is to provide patients with the best possible quality of life with the help of mechanical ventilation.
At the Center for Home Mechanical Ventilation in Groningen, we support more than 1,300 patients with diverse underlying diseases who rely on mechanical ventilation at home. During daily treatment, extensive high-frequency data are generated, particularly from ventilators, which patients typically use for around eight hours per day. This has resulted in a rapidly growing volume of rich longitudinal data with high potential clinical and research value. However, this data has historically been collected primarily for clinical monitoring rather than secondary use. As a result, it is fragmented across systems, lacks standardized structure, and is not centrally stored in a secure, research-ready database. These logistical and infrastructural limitations prevent us from fully leveraging the data for advanced analytics and AI applications. Because of this, valuable opportunities are currently missed, such as personalizing ventilation settings based on real-time data, reducing unnecessary outpatient visits, and predicting outcomes like exacerbations or hospital readmissions. To innovate care and prepare for future AI-driven applications, integration of all relevant data into a secure, scalable infrastructure is essential but currently lacking.